Family Registration

Potentials Foundation
PO Box 34, Sandoval IL 62882
potentialsfoundation@gmail.com
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Board of Directors

Christy Jordan RN BSN CCRN, President, MOPD II Mother, Illinois 

• Christy Jordan is the mother of two MOPDII children, Bridgette (26) and Bradley (24) and one average-height daughter, Brandi (28).  The Jordan family lives in Southern Illinois.  Christy is a registered nurse who specializes in Intensive Care Medicine.  She volunteers her time with Potentials Foundation, making her expertise available to others.  She offers her knowledge to other MOPDII families via phone calls, emails, and visits.  She is a sympathetic ear, a resource for questions, and a friendly voice of wisdom.   Her understanding of medical information and procedures helps bring medical terminology down to a level that all parents can understand.  She is discriminating and professional; respecting family privacy and parental choices when information is shared with her.  She has navigated many of the challenges MOPDII families face.  Bri’s experiences include a tracheostomy since early infancy, feeding difficulties, orthopedic challenges, and many other health impairments.  Brad has farsightedness corrected by glasses and dentures (leading up to dental implants).  He had been without major health concerns and experienced no hospitalizations, until this summer.   Christy had felt safe that both kids may have escaped the vascular abnormalities.  But in June of 2008, Brad experienced a ruptured cerebral aneurysm with moya moya disease.  Brad underwent three successful brain surgeries to correct the condition.  Brad recently started dialysis and is on the kidney transplant list. Christy has been a strong advocate for her children throughout their medical and educational life experiences.   She is here to help and share the wisdom she has learned from her family’s journey. 

Jim Linn, MRI Education Specialist, Treasurer, Primordial - unknown, Florida

• Jim has been in the Radiology Field for 30 years with the last 16 years working for Siemens Medical as an MRI Education Specialist. He holds a Bachelors degree in Biological Science from the University of South Florida. Jim is married to Sherry Linn. His daughter Allie, age 20, is a primordial dwarf but with no exact type as of yet. Allie has graduated from High School and has a goal of possibly doing Speech Therapy as a profession. Jim and his family's favorite thing to do is to Travel.​

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Natalie Horst, MOPD II Mother, Pennsylvania

• Natalie holds a Bachelors of Art in Psychology and is the mother of four children, three of which have MOPD II.  Natalie has spent the last 8 1/2 years caring for her children, taking them to medical and therapy appointments. She is also gathering as much knowledge as possible about MOPD II in order to ensure her boys and daughter have the best future possible and to empower her to help other families affected by Primordial Dwarfism.  Natalie is the creator of Big Steps for Little People 5K.

Advisory Board

Dr. Michael B. Bober, M.D., Ph.D., Co-Director, Skeletal Dysplasia Program, Nemours Children's Clinic, Wilmington, Delaware

Angie Duker, MS,Certified Genetic Counselor, Nemours Children’s Clinic, Wilmington, Delaware

Gary K. Steinberg, M.D., Ph.D., Chairman, Department of Neurosurgery, Lacroute-Hearst Professor Neurosurgery, Co-Director, Stanford Stroke Center, Stanford, California

Stephen J. Riedy, D.D.S., M.S., Fixed and Removable Prosthodontics, Maxillofacial Prosthetics and Implants, Plymouth, Michigan (734) 453-6840

Christina Flora, MS, Certified Genetics Counselor, St. Joseph's Children’s Hospital, Paterson, NJ (973) 754-3222

Review Board

Mike Riley

Jessica Rivera

Andrea Petrokonis

Chrissy Bernal

Jackie Kritzeck

Jenn Fifield