Potentials Foundation
PO Box 34, Sandoval IL 62882
[email protected]
Board of Directors
Christy Jordan RN BSN CCRN, President, MOPD II Mother, Illinois
Jim Linn, MRI Education Specialist, Treasurer, Primordial - unknown, Florida
Natalie Horst, Vice President, MOPD II Mother, Pennsylvania
Douglas White, Website Administrator, MOPD II Father, Illinois
PO Box 34, Sandoval IL 62882
[email protected]
Board of Directors
Christy Jordan RN BSN CCRN, President, MOPD II Mother, Illinois
- Christy Jordan is the mother of two MOPDII children, Bridgette and Bradley and one average-height daughter, Brandi. Both Bri & Brad have lost their lives due to the health complications from MOPD II. The Jordan family lives in Southern Illinois. Christy is a registered nurse who specializes in Intensive Care Medicine and home care for complex medical children. She volunteers her time with Potentials Foundation, making her expertise available to others. She offers her knowledge to other MOPDII families via phone calls, emails, and visits. She is a sympathetic ear, a resource for questions, and a friendly voice of wisdom. Her understanding of medical information and procedures helps bring medical terminology down to a level that all parents can understand. She is discriminating and professional; respecting family privacy and parental choices when information is shared with her. She has navigated many of the challenges MOPDII families face. Bri’s MOPD II health concerns included a tracheostomy since early infancy, feeding difficulties, orthopedic challenges, cardiac and kidney disease and many other health impairments. Brad had farsightedness corrected by glasses and dentures. He had been without major health concerns and experienced no hospitalizations, until the summer 2008. Christy had felt safe that both kids may have escaped the vascular abnormalities. But in June of 2008, Brad experienced a ruptured cerebral aneurysm with moya moya disease. Brad underwent three successful brain surgeries to correct the condition. Brad experienced dialysis and had a successful kidney transplant list. Brad developed Coronary Artery Disease and an extensive MI took his life. Christy has been a strong advocate for her children throughout their medical and educational life experiences. She is here to help and share the wisdom she has learned from her family’s journey. Brad & Bri are the backbone of the published medical literature for MOPDII. Christy was one of the authors for the latest published articles for the vascular care of Perecentrin gene mutation MOPD II.
Jim Linn, MRI Education Specialist, Treasurer, Primordial - unknown, Florida
- Jim has been in the Radiology Field for 30 years with the last 16 years working for Siemens Medical as an MRI Education Specialist. He holds a Bachelors degree in Biological Science from the University of South Florida. Jim is married to Sherry Linn. His daughter Allie, age 20, is a primordial dwarf but with no exact type as of yet. Allie has graduated from High School and has a goal of possibly doing Speech Therapy as a profession. Jim and his family's favorite thing to do is to Travel.
Natalie Horst, Vice President, MOPD II Mother, Pennsylvania
- Natalie holds a Bachelors of Art in Psychology and is the mother of four children, three of which have MOPD II. Natalie has spent the last 8 1/2 years caring for her children, taking them to medical and therapy appointments. She is also gathering as much knowledge as possible about MOPD II in order to ensure her boys and daughter have the best future possible and to empower her to help other families affected by Primordial Dwarfism. Natalie is the creator of Big Steps for Little People 5K.
Douglas White, Website Administrator, MOPD II Father, Illinois
- Doug is the father of Daniel White, a primordial dwarf with MOPD II who was born in 1988 in Connecticut. Doug spent his adult life working in Corporate Communications and Software Development. His work experience during that career spans the gamut from small companies where he was a Managing Partner to being an employee in a Fortune 50 Corporation. He currently lives in Danbury, CT with his wife Monica and the aforementioned son Daniel.
Advisory Board
Dr. Michael B. Bober, M.D., Ph.D., Co-Director, Skeletal Dysplasia Program, Nemours Children's Clinic, Wilmington, Delaware
Angie Duker, MS,Certified Genetic Counselor, Nemours Children’s Clinic, Wilmington, Delaware
Gary K. Steinberg, M.D., Ph.D., Chairman, Department of Neurosurgery, Lacroute-Hearst Professor Neurosurgery, Co-Director, Stanford Stroke Center, Stanford, California
Stephen J. Riedy, D.D.S., M.S., Fixed and Removable Prosthodontics, Maxillofacial Prosthetics and Implants, Plymouth, Michigan (734) 453-6840
Christina Flora, MS, Certified Genetics Counselor, St. Joseph's Children’s Hospital, Paterson, NJ (973) 754-3222
Dr. Michael B. Bober, M.D., Ph.D., Co-Director, Skeletal Dysplasia Program, Nemours Children's Clinic, Wilmington, Delaware
Angie Duker, MS,Certified Genetic Counselor, Nemours Children’s Clinic, Wilmington, Delaware
Gary K. Steinberg, M.D., Ph.D., Chairman, Department of Neurosurgery, Lacroute-Hearst Professor Neurosurgery, Co-Director, Stanford Stroke Center, Stanford, California
Stephen J. Riedy, D.D.S., M.S., Fixed and Removable Prosthodontics, Maxillofacial Prosthetics and Implants, Plymouth, Michigan (734) 453-6840
Christina Flora, MS, Certified Genetics Counselor, St. Joseph's Children’s Hospital, Paterson, NJ (973) 754-3222