Family Registration

Potentials Foundation
PO Box 34, Sandoval IL 62882
potentialsfoundation@gmail.com
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Board of Directors

Christy Jordan RN BSN CCRN, President, MOPD II Mother, Illinois 

• Christy Jordan is the mother of two MOPDII children, Bridgette (26) and Bradley (24) and one average-height daughter, Brandi (28).  The Jordan family lives in Southern Illinois.  Christy is a registered nurse who specializes in Intensive Care Medicine.  She volunteers her time with Potentials Foundation, making her expertise available to others.  She offers her knowledge to other MOPDII families via phone calls, emails, and visits.  She is a sympathetic ear, a resource for questions, and a friendly voice of wisdom.   Her understanding of medical information and procedures helps bring medical terminology down to a level that all parents can understand.  She is discriminating and professional; respecting family privacy and parental choices when information is shared with her.  She has navigated many of the challenges MOPDII families face.  Bri’s experiences include a tracheostomy since early infancy, feeding difficulties, orthopedic challenges, and many other health impairments.  Brad has farsightedness corrected by glasses and dentures (leading up to dental implants).  He had been without major health concerns and experienced no hospitalizations, until this summer.   Christy had felt safe that both kids may have escaped the vascular abnormalities.  But in June of 2008, Brad experienced a ruptured cerebral aneurysm with moya moya disease.  Brad underwent three successful brain surgeries to correct the condition.  Brad recently started dialysis and is on the kidney transplant list. Christy has been a strong advocate for her children throughout their medical and educational life experiences.   She is here to help and share the wisdom she has learned from her family’s journey. 

Robert Walker, Owner Traveler Exploration, LLC., Treasurer, MOPDII Father, Colorado

• Robert has spent 33 years as an exploration geologist. In 2012 he started his own company, Traveler Exploration, focused on oil and gas prospects in Oklahoma and the Texas panhandle. He holds a BS and a MS in Geology from Oklahoma State University.  Robert is married to Cristy Godwin. His son Nick, age 23, is a primordial dwarf.  Nick is a graduate of ENMU-Roswell but dreams of being in the movies.  Robert has been involved in the Potentials Foundation since 2008. From 2010 to 2012 he served as president of the Potentials Foundation.  Robert enjoys hiking, traveling, photography and any form of science.  Over the next two summers, he and Cristy will finish hiking the 486-mile Colorado Trail.

Natalie Horst, Secretary, MOPD II Mother, Pennsylvania

• Natalie holds a Bachelors of Art in Psychology and is currently working towards her Masters of Education in Elementary Education.  Natalie has spent the last 4 1/2 years caring for her children, taking them to medical and therapy appointments. She is also gathering as much knowledge as possible about MOPD II in order to ensure her boys have the best future possible and to empower her to help other families affected by Primordial Dwarfism.  Natalie is the creator of her annual 5k - Big Steps for Little People.

Advisory Board

Dr. Michael B. Bober, M.D., Ph.D., Co-Director, Skeletal Dysplasia Program, Nemours Children's Clinic, Wilmington, Delaware

Angie Duker, MS,Certified Genetic Counselor, Nemours Children’s Clinic, Wilmington, Delaware

Gary K. Steinberg, M.D., Ph.D., Chairman, Department of Neurosurgery, Lacroute-Hearst Professor Neurosurgery, Co-Director, Stanford Stroke Center, Stanford, California

Stephen J. Riedy, D.D.S., M.S., Fixed and Removable Prosthodontics, Maxillofacial Prosthetics and Implants, Livonia, Michigan (734) 427-6270

Christina Flora, MS, Certified Genetics Counselor, St. Joseph's Children’s Hospital, Paterson, NJ (973) 754-3222

Review Board

Mike Riley

Jessica Rivera

Andrea Petrokonis

Chrissy Bernal

Jackie Kritzeck

Jenn Fifield