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Board of Directors


Christy Jordan RN BSN CCRN
President
MOPD II Mother
Illinois

Natalie Horst
​Vice-President
MOPD II Mother
Pennsylvania

Jim Linn
Treasurer
Primordial (unknown) - Dad 
Florida

Juli Romero 
Secretary
MPD Unspecified/IGF1-R Mother
Texas

​Douglas White
Website Administrator
MOPD II Father
Illinois
Advisory Board


Dr. Michael B. Bober, M.D., Ph.D.
Co-Director, Skeletal Dysplasia Program 
Nemours Children's Clinic
Wilmington, Delaware

Angie Duker, MS,CGC
Certified Genetic Counselor
Nemours Children’s Clinic
Wilmington, Delaware

Gary K. Steinberg, M.D., Ph.D.
Chairman, Department of Neurosurgery
Lacroute-Hearst Professor, Neurosurgery
Co-Director, Stanford Stroke Center
Stanford, California

Stephen J. Riedy, D.D.S., M.S. 
Fixed and Removable Prosthodontics
Maxillofacial Prosthetics and Implants
Plymouth, Michigan
(734) 453-6840

Christina Flora, MS, CGC
St. Joseph's Children’s Hospital 
703 Main Street
Paterson, NJ 07503
Review Board


Mike Riley
MOPD II Father
Michigan

Jackie Kritzeck
MOPD II Mother
Minnesota

Shelly Smith
MOPD II Mother
Georgia

Jessica Rivera
MPD Mother
Ohio

Jenn Fifield
ORC IIII Mother
New York

Andrea Petrokonis
MOPD II
Pennsylvania

Chrissy Bernal
MPD
Texas
IRS 501(C)(3)
IRS FILING 2012
IRS FILING 2011
IRS FILING 2010
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