Potentials Foundation

Mission

Mission:
Our mission is to enrich the lives of those with MOPD II, MOPD I/III, Meier-Gorlin and remarkably similar but not otherwise specified microcephalic primordial dwarfismby facilitating opportunities for families to meet, provide information related to know health concerns and specialty care, and furthering research efforts.

Objectives:

1. Enriching lives through connection

  • Provision of private, web-based, global communication for registered families.
  • Financial assistance for registered families to attend the annual LPA conference.
  • Organization of social and medical research gatherings at the annual LPA conference.
  • Financial assistance for registered children and teens to attend the Painted Turtle Camp.

2. Resource and assistance

  • Provision of information designed to direct families to existing, available resources that may address the needs related to Microcephalic Primordial Dwarfism.
  • Provision of annual Medjet Medical Evacuation Membership for US-based registrants diagnosed with life-threatening vascular changes in the brain, as sufficient donor financial support allows.

3.  Research

  • Initiation and financial support of research determined to be related to the above-mentioned conditions.
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Potentials Foundation initiates and supports research through the following researchers:

Dr. Michael Bober of Nemours Clinic at A.I. DuPont Hospital for Children (Wilmington, DE)
f Western General Hospital (Edinburgh, SCOTLAND)

Dr. Carol Wise of Texas Scottish Rite Hospital (Dallas, TX)

Dr. Andrew Jackson of Western General Hospital (Edinburgh, SCOTLAND)

Dr. Stephen Doxsey of University of MassachusettsMedical School (Worcester, MA)

 

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© GaryParker.com 2010

 

2010 IRS Form 990-N Efiling

Potentials Foundation - A Cause for Chloe 
7400 E Caley Avenue # 190
Centennial, CO  80111
USA

info@potentialsfoundation.org

Families with a MOPDI/III, MOPDII, Meier-Gorlin or remarkably similar microcephalic primordial dwarfism not otherwise specified
diagnosis are invited to CLICK HERE and register with the foundation to join the family support
We would like to refer families with other forms of Primordial Dwarfism to the following sites for support:
Seckel Syndrome http://groups.yahoo.com/group/seckel-loop/
Russell-Silver Syndrome www.magicfoundation.org/www/docs/112/russel-silver-syndrome