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Tee
It Up For Conner:
The First Annual “Tee It Up For Conner”
Golf Tournament will be held Saturday, September 20th, 2008 at Old Trail Golf Course which is located in Crozet, Virginia
(15 miles West of Charlottesville). The tournament will benefit Potentials Foundation. It is a Captain’s
Choice with a shot gun start at 2:00 pm. There will some great contests and prizes throughout the day! There will also
be a casual dinner in which anyone can attend. It will include door prizes, an awards ceremony, raffles and possibly live
music. We are very excited to announce that Billington Wines will be our premier sponsor for this year’s tournament. Many
other sponsorship opportunities are available. This is an invitation only tournament and not open to the general
public. Please contact the foundation for more information.
Painted
Turtle Camp:
The Painted Turtle Camp in Lake Hughes, California will host a week for children with skeletal dysplasia August 9 through 14 of 2008. This
free camp is available for those ages 7 through 16. The camp facilities are amazing and the staff camper ratio is 1:2. The
deadline for registration is fast approaching. Applications need to be submitted by May 1, 2008. Click
HERE for a link to the Painted Turtle Camp application.
Here is some information from those who attended
the Summer 2007 camp:
Bob Walker
writes,
"Brad and Nick went to summer camp at the Painted Turtle and had an excellent time. The
camp was a beautiful facility north of Los Angeles at Lake Hughes. In Brad and Nick’s cabin were 8 other campers
and 4 counselors. The basketball gym was donated by the Lakers and the pool which was shaped like Shamu was donated
by Sea World. The cabins were even air conditioned! Nick has done other camps before and seemed to really enjoy
this one. The opportunity to hang out with Brad is what made it special. The boys got to canoe, play basketball
and do crafts. Nick especially liked the basketball gym even if it did have the ‘Lakers’ written on it;
Nick is a Nuggets fan. The food was good and Nick liked the fact that they could shower when ever they wanted.
He said it was hot there. Nick liked the other campers and made some new friends. From
a parent’s standpoint the counselors were clean cut, extraordinarily nice young people. The staff to camper ratio
was low so everything was very well run. Everyone was friendly and seemed to enjoy the opportunity to be there.
Christy and I went to Santa Barbara and enjoyed some relaxing adult time. Christy caught up on her reading
and I learned to surf. I know all of us enjoyed the trip and the boys are planning to go again next year."
Returning camper Brad says,
"Camp was fun!
I liked all of it. Spending the week with Nick was best. The counselors were alot of fun too. I brought home phone
numbers and addresses of new friends. I can't wait till next year."
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2008 Detriot
LPA Conference:
Time to register! The 2008 National LPA
Conference is scheduled for June 20-28 in Detroit, Michigan. You can register on the LPA website. In addition to all the wonderful LPA experiences, the following special events are planned for our Potentials families:
Sunday, June 22, 4-5 pm Dental Issues in MOPDII hosted by Dr. Riedy
Monday, June 23, 1-2:20
pm Educational Discussion with Melanie Dixon
Monday, June 23 4-5 pm Orthopedic Issues
in MOPDII hosted by Dr. Mackenzie
Monday, June 23 Plan to meet at the Fireworks!
Tuesday, June 24 1-4 pm Brain Vascular Issues and Upcoming Research hosted by Dr. Bober & Dr. Thompson
Wednesday, June 25 3:30-6:30 pm Pump It Up Party (offsite, transportation provided)
Please
check back often, more events will be posted soon. Financial assistance is still available to offset travel expenses.
Please email the foundation to request help.
2008 National LPA Conference Rap Sheet
2007 Seattle LPA Conference:
What an amazing time
we had at the 2007 Seattle LPA conference. Families bonded, shared experiences, exchanged medical information, and met
with the top medical experts. The ground work was laid for a new research study. It was a full week of activies,
education, information. Thank you to all our donors! Your generous support makes all this possible.
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