Background

A Brief Overview:

MOPDII is a rare form of proportionate dwarfism. Individuals with MOPDII are simply extremely small in stature. It is believed that fewer than 200 people have MOPDII worldwide. It presents during pregnancy as a lack of fetal growth, usually diagnosed as small for gestational age or IUGR. Infants are born with birth weights under 1500 grams. Feeding issues are sometimes present. Children do not reach the size of a typical newborn until well after the first year. Growth decelerates with age and maximizes at a height of around 40 inches (102 cm). Linear growth usually stops by age 12, and head circumference will remain small for age. Inherent to this condition are complex skeletal, dental, vision, and hearing issues, as well as severe brain vascular complications that may lead to aneurysm or stroke. Many will face multiple surgeries within early childhood. Physical issues are compounded by safety concerns and social struggles. It takes tremendous effort to live in a world that does not fit; where basic needs are out of reach. Daily living may present constant challenges, but those with MOPDII are uniquely equipped to rise above every obstacle. Life is approached with vibrance and an outgoing personality. Their lives are truly inspirational. Size only describes, it never defines. Potential...unlimited.